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Personal information protection |
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Basic
Policy of Radiation Effects Research Foundation
Concerning Protection of Personal Information |
The objective of the Radiation Effects Research Foundation (RERF) is to conduct research and studies for peaceful purposes on the medical effects of radiation and associated diseases in humans, with a view to contributing to maintenance of the health and welfare of the atomic bomb(A-bomb) survivors and to enhancement of the health of all humankind.
Results of RERF studies are now utilized worldwide for the purposes
of radiation-related medicine and safety. We are grateful to the
A-bomb survivors for their support and continue to make efforts
to respect their human rights and strictly manage their personal
information.
Scientific studies are beyond the scope of application of the newly instituted
law concerning protection of personal information (hereinafter referred
to as the "Personal Information Protection Law"), but we prepared
this basic policy in view of the developments thus far.
RERF intends to properly handle personal information in observance
of the following items: |
| 1. |
RERF, in handling personal information, pledges
to comply with the Personal Information Protection Law. |
| 2. |
RERF, in conducting research and studies that are beyond the scope of application
of the Personal Information Protection Law, pledges to comply with the
ethical guidelines issued by the national government (hereinafter referred
to as the "national ethical guidelines"), which include the Ethical
Guidelines for Clinical Research (Ministry of Health, Labour and Welfare),
Ethical Guidelines for Epidemiological Research (Ministry of Education,
Culture, Sports, Science and Technology/Ministry of Health, Labour and
Welfare), and Ethical Guidelines for Human Genome/Gene Research (Ministry
of Education, Culture, Sports, Science and Technology/Ministry of Health,
Labour and Welfare/Ministry of Economy, Trade and Industry). In addition,
RERF will strive to protect personal information by implementing the following
steps: |
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| (1) |
RERF, prior to conducting research and
studies, will have a relevant committee (Human Investigation
Committee or Ethics Committee for Genome Research) review
research protocols concerned for compliance of the protocols
with the national ethical guidelines, and will not initiate
the research and studies concerned without approval
from the committee. |
| (2) |
RERF, when obtaining personal information from individuals
themselves, will inform the individuals of the purpose
of use of the personal information in advance, except
when cases are considered exceptions in accordance with
laws and ordinances. |
| (3) |
RERF will not provide personal information to any
third party without consent from the individuals from
whom information was obtained, except when cases are
considered exceptions in accordance with laws and ordinances. |
| (4) |
When outsourcing activities to other medical institutions,
RERF will choose reliable organizations and conclude
work contracts with the other party to ensure proper
handling.of A-bomb survivors' personal information. |
| (5) |
RERF will release personal information in its custody
when requested by the individuals from whom information
was obtained. |
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| 3. |
RERF will strive to build institutional and information
systems to ensure protection of
personal information. |
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Effective October 11, 2005
Toshiteru Okubo
Chairman, Radiation Effects Research Foundation |
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For inquiries on the above basic policy, please
contact:
Personal Information Protection Consultation Service, General Affairs
Section
Phone: 082-261-3131 / Fax: 082-506-1531
Inquiry form  |
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